Team
Kruger
Team Double Helix
Team Alaska
Team Rebels With A Cause
Amazons
of the Mississippi
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The
Great Mississippi River Race for Rett Syndrome, May 2001
is
the longest canoe/kayak marathon race in history. Five dauntless,
courageous teams used only human muscle powered propulsion
of 2 person boats to travel 2,348 miles down the Mississippi
River from Lake Itasca, Minnesota to the Gulf of Mexico. Physical
and mental endurance were taken to the extreme while attempting
to paddle nonstop to the Gulf of Mexico in world record time
during this charity event. More
importantly, participating teams and families from across
the country raised awareness of Rett syndrome in the scientific
community and research funds to find a cure.
Read
more ...
Rett
Syndrome
is a severe neurological disorder that randomly strikes
1 in 10,000 to 15,000 young girls (over 99% are female)
within the first two years of life. Rett
Syndrome
can affect any child in any family. After
an apparently normal 6-18 months of development, a typical
Rett syndrome child begins to suffer the loss of any speech
and the ability to walk normally. This is soon followed
by
hard to control seizures, severe breathing problems, loss
of hand use, loss or no walking, severe scoliosis, autistic
behavior, and read
more ...
Flagship
Double Helix - Clark
Eid, Event Chairman, built the unusual cedar strip flagship
Double Helix, for Team Double Helix, for this
race in honor of his daughter Amanda. Amanda has Rett
Syndrome.
Clark
designed the two rose vines that can be seen wrapping
completely around the Double Helix craft. The rose
vine was designed to mirror a segment of double-stranded
DNA that codes for a peptide that spells: A-M-A-N-D-A-S-D-R-E-A-M-K-E-E-P-E-R.
The
Double Helix is in the process of being publicly placed
at the world-class Morial Convention Center in New Orleans
so that we can continue to raise awareness of Rett Syndrome
to the general public.
Read more....
Visitor
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Legal
Copyright: The Great Mississippi River Race For Rett Syndrome,
2001. All Rights Reserved
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